First of all, thank you to everyone who has left comments or sent emails about Ryan. It is really nice to have such caring people in my life and the concern you’ve shown means a lot.
Ryan is doing much better today. He is still in ICU where they can monitor him more closely, but unlike Wednesday night and yesterday, he has rarely been in bed. He is up, mingling with staff, eating, still not drinking much, taking his pills orally, smiling and generally doing so much better. He did have one focal seizure this morning at 11:30, but hasn’t had any since. He also went all night and the majority of the morning seizure free, so he is definitely making progress. If he continues to do well throughout the night and tomorrow morning, they will probably move him to a step down unit.
Dave did meet with the neurologist last night and she told him that the absolute earliest he will be released is Sunday, but more likely it will be Monday or Tuesday. In the meantime, he just needs to continue progressing like he has today. If he does then maybe, just maybe, they’ll let him go home this weekend. We can always hope!
I am so glad you have some encouraging news! I cannot imagine how difficult it is…doesn't matter what age your child is, they are always your "baby" and we don't want them hurting or struggling. I hope Ryan continues to improve and can get back to his regular routine! (And you can get some sleep again 🙂